BECKWITH-WIEDEMANN SYNDROME RESOURCES
Websites
Children's Hospital of Philadelphia
What is Beckwith-Wiedemann Syndrome?
Beckwith-Wiedemann Syndrome Resources
Beckwith-Wiedemann Syndrome Overview- Video
National Organization for Rare Diseases
Foundations
National Organization for Rare Disorders
GOSH
National Organization for Rare Diseases
Articles
THE TABLES LISTED BELOW HAVE BEEN HELPFUL RESOURCES TO GUIDE OUR JOURNEY AS WE AWAIT OUR GENETICS COUNSELING APPOINTMENT.
DISCLAIMER:The list of resources provided do not promote one agency, foundation or product. These links are provided as a resource to help support your journey. If you have a product, article or resource that you would like to share, please submit to bornwithstrength@gmail.com