The Million Mile

Mommy and Adeline are gearing up to participate in the Million Mile for Alex’s Lemonade Stand Foundation. We have pledged to complete 75 miles in the month of September and personally raises $500.00 to further support Beckwith Wiedemann Syndrome research and childhood cancer.

Anyone, anywhere can join in this flexible fitness challenge that lets you walk, run and cycle to help kids fight cancer! Join us in logging miles, raising awareness and help bring in donations and fund breakthrough research for more cures during one of the largest Childhood Cancer Awareness Month events!

To support Team Born With Strength listed under Allison Andersen reach its goal in Alex’s Million Mile by donating to Team BWS through the link https://www.alexslemonade.org/2024/teambws or Born With Strengths personal donation page to directly support families (https://www.gofundme.com/f/born-with-strength-beckwithwiedemann-syndrome).

Beckwith-Wiedemann Syndrome (BWS) is a rare genetic disorder. For certain types of BWS, up to 25% of children will develop cancer, most commonly liver and kidney cancer. We are participating in Alex’s Million Mile to help move us closer to finding a cure for all children with cancer. Thank you for your support!

Why did we choose a zebra as the logo for Born With Strength?

You may be wondering why Born With Strength chose a zebra and the colors green and yellow as their primary logo to represent their organization. Great question! There were a few things that went into the thought process behind this.

"When you hear hoof beats behind you, don't expect to see a zebra." According to Rare Disease in General Practice, "The above adage is especially useful in primary care as many of the conditions we see are common. But it is not so useful when we consider our role in both diagnosing and supporting patients with rare diseases. We must be ready to think again and look out for the horse with stripes." Beckwith-Wiedemann Syndrome is classified as a rare genetic disorder hence the zebra as the main logo.

Adeline was fortunate enough to have a pediatrician in the hospital who was able to think quickly out of the ordinary. The pediatrician brought attention to the potential of a rare condition sooner rather than later.

Additionally, the mint green and golden yellow colors are used to raise awareness of Beckwith-Wiedemann Syndrome. These colors are most commonly found in the shape of a butterfly. A golden yellow ribbon is the international awareness symbol for Childhood Cancer while a mint green ribbon represents genetic disorders.

Now, put all of this together and behold the logo for Born With Strength! A little bit of zebra, mint green, and golden yellow. Reach out if you want to learn more about Born With Strength or Beckwith-Wiedemann Syndrome at bornwithstrength@gmail.com.

Resources:

Evans WR, Rafi I. Rare diseases in general practice: recognising the zebras among the horses. Br J Gen Pract. 2016;66(652):550-551. doi:10.3399/bjgp16X687625

https://www.acco.org/gold-ribbon-awareness/#:~:text=The%20international%20awareness%20symbol%20for%20Childhood%20Cancer%20is%20the%20gold%20ribbon.