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BECKWITH-WIEDEMANN SYNDROME RESOURCES

Websites

Children's Hospital of Philadelphia


What is Beckwith-Wiedemann Syndrome?


Beckwith-Wiedemann Syndrome Resources


Beckwith-Wiedemann Syndrome Overview- Video


GOSH


Beckwith-Wiedemann Syndrome


National Organization for Rare Diseases


Beckwith-Wiedemann Syndrome


Cancer.Net


Beckwith-Wiedemann Syndrome


Foundations


BWS Awareness


BWCFI


National Organization for Rare Disorders 


Articles

Beckwith-Wiedemann Syndrome


Macroglossia 


THE TABLES LISTED BELOW HAVE BEEN HELPFUL RESOURCES TO GUIDE OUR JOURNEY AS WE AWAIT OUR GENETICS COUNSELING APPOINTMENT.


BECKWITH-WIEDEMANN SYNDROME

DISCLAIMER:The list of resources provided do not promote one agency, foundation or product. These links are provided as a resource to help support your journey. If you have a product, article or resource that you would like to share, please submit to bornwithstrength@gmail.com.

Disclaimer: This website is not intended to provide medical advice, please consult with your medical provider.

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